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Episode 22: Living with a Degenerative Disease, with Kate Aks and Maria Aleandra

In this episode...

“Just when you have something figured out, it completely changes again.”

That’s what Maria Aleandra says about life since her husband, Jules, was diagnosed with ALS in March 2020.

In this episode of Your Permission Prescription, I talk to Maria about what she’s learned since caring for her husband over the past year and a half. How does life change when you or your partner has a degenerative disease?

Also in this conversation is my sister, Kate Aks, who has lived with MS for 10 years and whose husband, Allan, has Parkinson’s Disease. Together, their partnership and family are thriving amidst challenging conditions.

If you or someone you love has received a similar diagnosis, I hope this episode supports you on your path.

Listen to Your Permission Prescription: Episode 22 to learn how to give yourself permission to honor your feelings when navigating life after a diagnosis.

What We Discuss & Highlights From Episode 22:

  • Maria is honest and candid about how Jules’s ALS diagnosis has changed their relationship in both emotional and practical ways.
  • Kate shares how she and Allan manage daily life and raise two children while living with challenging conditions.
  • How living with a degenerative disease changes your romantic relationship.
  • Nurturing yourself and finding joy while being a carepartner — an important reframe of the concept of caregiver.

Get more out of reading than listening? Read the transcription of this episode of Your Permission Prescription by clicking below.

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